There are hundreds or thousands of people like us out there. I am “luckier” than most in that I have irrefutable medical proof that I have a rare chronic disorder. Many of us are not that lucky. Think before you judge and speak people! Otherwise, you richly deserve whatever diatribe you have triggered! And I want to be there to watch you squirm, and if you are not squirming enough, I’ll see what I can do to remedy that!
Chronically fit and well people (and, I suspect, those with a degree of health issues that also have escaped formal dx for whatever reason) simply do NOT understand chronic illness. They just don’t.
This is evidenced by the ridiculous things they trundle out for our “benefit”, their pearls of wisdom that are supposed to either encourage us or belittle us into some sort of miraculous spontaneous recovery from whatever ails us, which is usually something really quite minor, in their opinion.
Here are just some of the things I am sick to death and back of hearing:
1. “You sleep too much, that’s your problem!” Absurd. Anyone with a working brain cell will tell you that (sleeping pills notwithstanding) it is literally impossible to MAKE yourself sleep. It can’t be done. If it could, insomnia wouldn’t exist. We sleep because our bodies are knackered, exhausted, wiped-out, fatigued, tired, whatever…
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