Tag Archives: medical

Don’t Speak……Don’t Tell Me ’cause It Hurts. What NOT To Say To Someone Chronically Ill. Part Two.

Here is the SECOND part of a series. Please read the first part directly below this one first, although it is not absolutely necessary. If this is the only one you have the interest or patience for, it will do the job.

effingfibro

8.   “You’ve brought this on yourself. You were so determined to be ill that you’ve talked yourself into it.” Yeah……cos I’ve got THAT much control over every one of my involuntary physiological processes…I must be some kind of Indian Guru or something. Where’s my medal? And if I’ve got such an awesome level of control over my health, how come I can’t make myself well again? I wasn’t “determined to be ill,” you moron; I just knew something wasn’t right a long time before any of you did because I live in this body. Do you seriously think I purposely, deliberately screwed up my happy, productive, independent, joyful life? The one I had Before All This? There is no upside to be crippled by some mysterious illness that no-one can find a cure for. Well, maybe one: it strips away shallow friendship, sorts out the real “friends” from the…

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My Dire-y 06/03/2015, Pooped

Now that Holly the cat has your attention (cheap trick, I know.  She has absolutely nothing to do with this blog post).

I had a very good, and very tiring day today. I have a good friend that I have seen very seldom, for far too long. We definitely love each other, and each other’s company. Through a set of very unfortunate circumstances, she had to have her left leg amputated. I am sure it has been a terribly rough time for her, readjusting to life in a wheelchair, and learning to use a prosthesis. Right now she can only walk a short distance on it, but is diligently practicing to improve. We are somewhat similar in personality, at least in the fact that we are both intellectual, and snarky….very snarky. In fact, the word snarktankerous very perfectly describes my own personality.

One of the things she does for the pure pleasure of it is gardening, so off to Lowes we went for herbs, pots, and dirt….not just any dirt, but “special” dirt, specifically formulated with the greatest of care to maximize the quality of life for a few lucky plants. These plants should be exceedingly grateful that they are being tended by my long-time friend.

Now, in case you don’t know me from reading my past blog posts, I will tell you that I have a rare disorder which eats up my motor nerves, so I am now much weaker than I should be, and have muscle atrophy as a result. Most of the trouble is in my left hand/arm and right leg. If I fall, I cannot get up unless there is a chair, wall, or other object to grab and push on with my hands/arms because of the weakness of my legs. Also, my left hand is so weak that I have lost probably 85% of its normal function. Oh, and if that isn’t enough, I am extremely fatigued ALL the time. On bad days, I simply don’t have the energy to leave the house, and spend the day sitting on the couch, or sleeping.

Now why have I reminded you of all this? Well, it is relevant to my story, so relax, you will understand in a moment, I promise. Even when I go grocery shopping, by the time I get back home and have put everything in its proper place, it is all I can do to get my clothes changed, and make it to the couch. I am pooped for the rest of the day. So later, when we got back to her place and I had unloaded 4 bags of dirt, carrying them to where they needed to be, I was out of breath and my heart was beating strong and fast, from just that little bit of effort. I get worn out very quickly and easily.

But the story of my day is nowhere near over yet.  Backing up a tad bit…  She also wanted to check out a community center where they have fitness equipment and a huge pool. She has been wanting to swim in the strongest of ways for quite some time. So we got there and checked out the pool which was enormous! There was a water slide along with several sections of poolage which all kinda ran together as one. It was gorgeous! Now, since I am on disability, and have a Humana Medicare plan which will pay for a membership at a fitness place that supports the Silver Sneakers program, AND I had been thinking for a long time about how much I love to be in water….long story short – I now have a completely paid-for (not directly by me) membership. It was her intention from the start to get a membership for herself, so…well…she did. Now this pretty much obligates me to take her there several times a week to swim. Seein’ as how I had been loathe to leave my house ’cause frankly, it just seemed like too damned much effort, I really could use the exercise and the time away from my man-cave. Also considering her need for a driver, it seems like a match made in heaven.  Who knows, maybe I can find a girlfriend there….hey, it could happen.

So, by the time I got back home, I was thoroughly pooped! It was a good day though, with some stimulating discussions. At some point, our snarkiness comes into full play as we lament the sorry state of our beloved government, and its fucking total mismanagement of the country, and total corruption, caused by selfishness, complete disregard for the divinity and sanctity of anyone not in their “club”, and their lust for money. Mostly the latter. Then we move on to snarkin’ about how, after all these millennia, and the social awareness that is present in the minds and hearts of so many people today, could there possibly still exist so many miscreants who are chomping at the bit to kill, torture, rape, enslave, control, and commit violence just for fun (more likely for cash)? We moan about our inability to stop wars, racism, and classism, and promote goodwill and brotherly/sisterly love. We agonize in vain for a way to convince people to simply value ALL human life equally and put an end to heinous animal cruelty, and to the masses of starving human beings (most especially the children), while the selfish “Scrouges” sit pretty in their castles counting out their incredible stash of the world’s money. This most terrible human injustice remains uncorrected while the “Beast” continues to have a field day, actively enslaving all humanity.

Yes, it was a VERY good day!

PAIN SCALE

Here is something that might be useful.  I took a couple of existing pain scales, and modified them to work for me, and added a few of my own descriptive words and phrases.  In one case, the scale only used even numbers, so there were only 5 levels described with smiley faces.  Enjoy!

0 – No Pain

1 – Barely Noticeable

2 – Mild, Nagging Pain, Ache

3 – Noticeable Pain

4 – Moderate, Uncomfortable Ache, Cannot Relax, Restless

5 – It Hurts, Pain, Hard to Sleep

6 – Severe, It Hurts a lot, It Hurts Damnit!, Cannot Sleep

7 – Snappish, It Fucking Hurts!, Cannot Concentrate

8 – Very Severe, Moaning, Do Anything to Make it Stop, Need Help

9 – Excruciating, Unbearable, Tears, On the Verge of Insanity, Beat Head Against the Wall, Think Seriously about Cutting Off the Offending Member

10 – Worst Possible Pain, Insanity, Suicide, Not Humanly Bearable